HERStory: Henrietta Lacks

Henrietta Lacks

Henrietta Lacks may not be a household name for many, but her legacy has left an indelible mark on the world of medicine and scientific research. Born in 1920, Henrietta Lacks faced a battle with cervical cancer that would unknowingly make her one of the most important figures in medical history. 

Henrietta Lacks was a young African American woman who, in 1951, sought treatment at Johns Hopkins Hospital for cervical cancer. Little did she know that her journey would become a pivotal moment in medical history. During her treatment, a small sample of her cancer cells was taken without her knowledge or consent. This single act would lead to a cascade of events that forever changed the landscape of medical research.

The cells taken from Henrietta, known as HeLa cells, became the cornerstone of numerous scientific breakthroughs. These cells were the first human cells successfully cultured outside the body, paving the way for groundbreaking discoveries in medicine and biology. HeLa cells became instrumental in developing vaccines, understanding the mechanics of cancer, genetic studies and advancing various fields of research. However, the remarkable scientific achievements were shrouded in a cloud of ethical uncertainty—Henrietta Lacks had never given her permission for her cells to be used in this way.

Henrietta Lacks’s story brings into sharp focus the critical importance of patient consent in medical research. The use of her cells without explicit permission raised profound ethical questions about the rights of individuals over their own biological materials. Informed consent is not just a legal requirement; it is a fundamental ethical principle that respects the autonomy and dignity of patients.

The absence of informed consent denied Henrietta the agency to make decisions about her own body and left her family grappling with the implications of her unwitting contribution to science.

In 2010, journalist Rebecca Skloot brought Henrietta Lacks’s story to the forefront with her book, “The Immortal Life of Henrietta Lacks.” The book not only delves into the scientific impact of HeLa cells but also explores the personal and ethical dimensions of Henrietta’s story, providing a human face to the cells that transformed modern medicine.

While Henrietta Lacks did not live to see the profound impact of her cells, her legacy lives on. In recent years, efforts have been made to acknowledge and honor Henrietta’s contributions to science. Initiatives aim to recognize her and her family’s role in advancing medical knowledge and to ensure that future medical research upholds ethical standards.

Henrietta Lacks’s story serves as a powerful reminder that advancing science should never disregard the rights and dignity of individuals. In the continuous quest for medical progress, it’s crucial to prioritize principles like patient consent and ethical research practices. This ensures that individuals, like Henrietta, are acknowledged with the respect and transparency they rightfully deserve.